About Us

Our Approach

We are Danny and Stefani Huml. I, Stefani, am the writer and total foodie. Danny is the gym rat, double lung transplant recipient, and together we're navigating our new life post-transplant and post-wedding (both of which occurred in the very short year of 2019. NBD).

The quick(ish) version

You can read The Beginning when you have more time, but essentially our LungWinded story begins in 2017 with Danny’s diagnosis of a rare, interstitial lung disease called Pleuroparenchymal Fibroelastosis (aka PPFE... it’s much easier). Like all interstitial lung diseases, PPFE is a scarring of the upper part of the lungs that makes the tissue hard and useless. There’s little known about the causes, treatments and prognosis, but we knew early on that he’d be looking at a lung transplant down the line. "Down the line" came much faster, and transplant day was June 15, 2019.

Our Story

Why LungWinded?

The idea for this site was sparked after I saw the need for more awareness and support for those diagnosed with PPFE and their loved ones. I had joined a small, but impactful Facebook support group, and I read a book written by a man, who had undergone a bilateral lung transplant due to PPFE in 2008. But the idea really came to fruition in early 2019 when we were told that Danny was a transplant candidate. It provided an opportunity to share updates with family and friends and document our journey for others going through similar experiences.

What's the latest news?